Measurement brief: Measuring HIV stigma and discrimination

STRIVE Stigma Measurement Brief.pdf

HIV-related stigma and discrimination continue to be experienced across the globe, impeding access to and scale-up of HIV prevention, treatment, care and support programmes. In 1987, HIV stigma was described as the ‘third epidemic’, coming after those of HIV and AIDS and no less crucial. While many individuals, organisations and governments have worked diligently to reduce HIV-related stigma and discrimination, such efforts are not implemented at a scale necessary to have a significant impact on HIV outcomes, thus stigma continues to fuel HIV transmission. 

To be able to characterise stigma as a global driver of HIV infection, it is necessary to measure it more uniformly and accurately."

This brief is designed to guide researchers in the study of HIV-related stigma and discrimination, either as the main focus of research or as a complement to related topics. It outlines the key domains of HIV-related stigma and discrimination that need to be measured if we are to understand how stigma operates and how it can be reduced in a particular setting. The brief lists areas requiring further question development, testing and validation and proposes specific questions for measuring the key conceptual domains of stigma and discrimination across three populations:

  1. people living with HIV
  2. the general population
  3. healthcare providers

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